Swedish investigation highlights importance of diagnosing post-COVID syndrome in children

Four years ago, Arelie Aschan experienced mild illness. Although she recovered quickly, she became unwell again a month later, developing a fever that lasted a day. Subsequently, she faced a wide array of symptoms. “We counted about thirty different symptoms, making it incredibly difficult for us to understand what had happened,” Arelie’s mother, Tesi Aschan, stated. Arelie suffered extreme fatigue that often kept her confined to her room.

Initially, they consulted multiple doctors, but none could diagnose her condition. One suggested she might be fabricating her symptoms, while a psychologist described her as hypochondriac, which further complicated her access to care. Eventually, Tesi proposed that the doctor test for recent COVID-19 infection, leading to the diagnosis of post-COVID syndrome.

Today, the Swedish National Board of Health and Welfare released an investigation aimed at increasing awareness about post-COVID in healthcare and social services. The study emphasizes the importance of proper diagnosis, especially for children, as long-term symptoms can impact their education.

“It’s crucial to investigate, alleviate symptoms, and provide support, even when the cause of long-lasting issues after a COVID-19 illness isn’t always clear. Care must take an individualized approach, considering the patient’s medical history as well. It’s often a puzzle that needs piecing together,” explained Thomas Lindén, department chief at the Board.

Arelie is still unwell but can now manage at least half-days at school, and several of her symptoms have eased. She has shared her experiences regarding the illness in an accompanying video.

Post-COVID is characterized by lingering symptoms three months after a COVID-19 infection or new symptoms without another explanation. While most see a gradual decline in symptoms, some face severe and prolonged issues requiring treatment and rehabilitation, and, in some cases, specialized care.